You are currently browsing the The Trials and Triumphs of Down Syndrome weblog archives for November, 2010.
30. November 2010 by Kelly.
The most rewarding things you do in life are often the ones that look like they cannot be done. -
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22. November 2010 by Kelly.
This week in the
Freedom, those that have served our country and those that serve her still; God, for everything; my wife for saying ‘I do’ and meaning it; for my sons, my everyday inspiration; my dogs, for loving me. For my health and my doctors for helping me keep it; for my employer and the checks he provides me; for those that read this, hopefully you benefit from it in some way; and for everything I have in life and for all that I will ever achieve, for if not for all the above, my life would be unfulfilled.
Seems quite simple doesn’t it, my life and the things I am thankful for; how about you?
One of my doctors is my dentist and I am thankful that she helps me retain my smile; and to pay it forward, I share my life with you in hopes that you too will smile. The older I become, for which I am also thankful; the more I like to give than to receive; how about you?
A life is not important except in the impact it has on other lives.
Jackie Robinson
My sons have presented me with life’s greatest gift in that their lives have impacted me so much, that I would be a fool not to share it with you.
Simple yet, how many times during the day do we forget that what we are doing is impacting others, whether or not we admit it, recognize it or not. And this too impacts how we deal with others and how they deal with us, which leads us in either a vicious circle or a life well lived. The choice is simple, the act takes effort.
We trust in those that care for and teach our children when we send them to school, this is true of all parents; however parents of children with special needs also trust in those that care for our children with their safety; just the other day, Hunter decided to take a trip to the swing set on the school grounds without permission or knowledge of his care taker. Thankfully he was located within minutes as the entire school was alerted of his absence and when his mother arrived at school to retrieve him, she asked that the ‘campus police officer’ reprimand Hunter for his ‘poor choice’ for his safety, to which the officer replied as he looked at Hunter (Hunter having tears in his eyes) ‘oh no, I cant scold him, look . . .’ but after careful consideration and with a stern face the officer knelt down and looked Hunter in his teary eyes and said ‘what you did was unsafe and it scared everyone, please don’t do that again, ok’. . . . . Impact . . .
Happy Thanks Giving
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16. November 2010 by Kelly.
To make a difference in the lives of my sons, my family’s life, and families in similar situations and for those that find their lives being marginalized because they have a developmental disability.
Those who cannot tell what they desire or expect, still sigh and struggle with indefinite thoughts and vast wishes.
– Ralph Waldo Emerson
Imagine for just a few moments that you are unable to speak or communicate your dreams and desires nor your thoughts and feelings; this is the life my sons live every day.
Whatever you do, you need courage. Whatever course you decide upon, there is always someone to tell you that you are wrong. There are always difficulties arising that tempt you to believe your critics are right.
– Ralph Waldo Emerson
Those currently on the ‘wait list’ for services in the state of
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8. November 2010 by Kelly.
I was asked to submit a 500 word or less story to a Down Syndrome publication; thought I would also share it here:
Kyle and Hunter Krei are twins; born in 1995 both with Down syndrome and both have Autism Spectrum Disorder; only children to Kelly & Michele. Life as we know it changed the day our sons were born; beyond our grief and confusion, these two little boys quickly grabbed our hearts and have grown to show us that we should live everyday with purpose and passion.
We have been blessed that our sons have been accepted in the neighborhood and community and that they have attended public schools and are now sophomores in high school. Along the way, they have learned from therapists, teachers, fellow students, family and friends; but we have learned far more from them than they will ever learn from us.
Our biggest inspiration in life comes from them in that they never complain, about anything, and that they love us unconditionally. Of the many lessons we have learned, none is more important than patience; without it our lives would be consumed with chaos, but within the lesson we have learned more about ourselves and how we can give more so that others can live better.
Being our only children, my wife and I approach each day with this sense of purpose; that we build a better life for not only our sons, but the developmentally disabled community; that inevitably one day when we are no longer on this earth together, that they continue to thrive and are not subject to living less of a life than they do while we are here. Our passion and commitment go beyond advocating, we truly feel honored that we serve as diplomats for a community of people and families that live most of there lives being marginalized.
Kyle and Hunter served as the inspiration for their father’s book The Trials and Triumphs of Down Syndrome ©; the book tells the story of the lives of the Krei family from birth to the age of 14 and how their birth affected the marriage, relationship and lives of Kelly & Michele and plants an idea of how they can impact the lives of the developmentally disabled with the proceeds of book sales. It may seem a rather odd idea, but Kelly believes that funds of unimaginable amounts can be raised by sharing what we have learned. In a day and time when so much is made of those who have so much and make so little of themselves; Kyle and Hunter serve as inspiration with their infectious love and zest for life.
Thanks for reading . . .
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4. November 2010 by Kelly.
When we were first married, my wife and I really had no idea how good we had it before we had our sons, or maybe, just maybe we had no idea we would have it so good with Kyle & Hunter.
It seems that our biggest joys come from the simplest of things; last night for example, I stopped at the grocery to pick up a few things and I noticed that Toy Story 3 was for sale, so as a treat for my sons, I purchased one.
Upon arriving home I summoned both boys to the kitchen to give them their new movie, they were thrilled beyond words, Kyle was ‘wooo hooing’ and Hunter was at his ‘Chewbacca’ finest and all was right with our world. Later at dinner, Hunter made it known that he wanted his own copy of the movie as his brother was hogging the remote control.
You see, our boys may have more than one disability, but operating anything with a remote control is well within their abilities. They find a particular scene in every one of their favorite movies and watch that scene over and over and over again. Some movies we have 4 and 5 copies of, because they will watch the same movie on every TV in the house at the same time and every once in awhile, they cue up the same movie on different TV’s at the same time so they can watch them in stereo. It’s times like these that I am most grateful that I am witness to ‘times like these’.
I went to the store after dinner and purchased another copy of Toy Story 3, so that my sons could each have their own; Hunter was speechless, which is my sense of humor showing, Hunter is non-verbal; but Hunter was beaming with the kind of joy that brought tears to my eyes and a lump to my throat and warmth to my heart. All this from a movie, who would have ever thought life could ever get any better than this.
When I was a young man, I wanted to be a writer but had no idea ‘why’ or ‘what’ to write about. Now I find myself with a life time of material in the lessons that I learn from my sons; hopefully I have enough ‘time’ to write all about it.
How are you spending your time?
Thanks for spending time with me!
My blog isn’t fancy like most, no pictures or fancy grahics, but if you would like to ’see’ us, you are invited and welcome to become a ‘fan’ of Kyle and Hunter. Please visit www.kreilife.com and click on the fan page button. Be Well and Be Blessed.
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2. November 2010 by Kelly.
Four years ago today, I had quit my job, used up all the savings my wife and I worked so hard at saving because I was mad and I was sick and tired and I was sick and tired of being mad.
I quit my job because it was either that or get fired for ‘placing a higher priority on my family’ than I was on my J(ust) O(ver) B(roke) and I quit because I was mad that my employer had the balls to tell me that ‘the company’ came first and my wife and sons came after that; so I quit and went in search of a new start and in less than time that it will take to write this, all the money in our savings account was gone; gone paying bills and buying groceries, just gone; and its funny what a person will do when they have one foot on the edge and the other foot over it, I stepped and the next step appeared . . .
My beautiful wife had enough, she told me I better get to work and get things ‘figured out’ because I was about to lose everything . . . everything that mattered most, my wife, my children, the roof over my head . . . everything. Adding to my thoughts at the time was a conversation I had with a gentleman named ‘Bill’ William Bailey; I had won the opportunity to a 20 minute phone conversation with Mr. Bailey, the first 5 of which he told me to tell him what I wanted ‘more in life than I currently had’, then after telling him my story for the next 5 minutes he proceeded to spend the next 10 minutes explaining that based on what I had just told him, that if I didn’t make a drastic change and make it immediately, I was on a direct path to living in a cardboard box and holding a sign stating ‘Down on my luck, any help will do’.
Being just short of homeless and placing my fate in the hands of prayer, I went to my insurance agents office and asked one simple question, would he ‘teach me to sell insurance?’ I had spent my entire adult working life, selling auto parts and though I didn’t really sell anything more than ’service’ and my ‘reputation’, I knew nothing else; so insurance was truly a new start, and being broke was motivation. One more thing to add motivation, my new employer had just opened his agency and did not have any budget for ‘employees’, therefore from day one (after I had paid for and earned my license) I would be paid strictly on commission based on closed sales or policies “sold”.
Four short years ago; I was broke, and so you get the what I’m saying, broke is different than ‘being poor’; broke is ‘running out of money before you run out of bills’, poor is not having any money to accumulate ‘bills’. I’m not sure which is worse, however I do know now that I never want to be faced with either EVER again. So I started over and four short years later, I’m paying my bills, I still have my loving wife, my children and a roof over my head; I’ve sold nearly 1 million dollars in premium of insurance, home and auto insurance specifically; and ‘no’, I am not making nearly the money I was when I quit my job 4 years ago, but everyday when I leave my office for the day to go pick up my sons from school or tend to any ‘family’ matter, I do so knowing that ‘the results I produce are directly reflected in the amount of my commission check’, and this is okay with me.
Four years ago seems so distant, yet the scar remains to remind me of my lesson learned; in my mid 40’s I started over in a profession I knew nothing about and with a young man half my age. I have gained that which I was given when I needed it most; trust, confidence and Respect and I am forever grateful. You can start over right from where you are, you need only take one step.
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